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, by B. Smith
Download Ebook , by B. Smith
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Product details
File Size: 2677 KB
Print Length: 302 pages
Publisher: Harmony (January 19, 2016)
Publication Date: January 19, 2016
Sold by: Random House LLC
Language: English
ASIN: B00WPQHIMA
Text-to-Speech:
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Amazon Best Sellers Rank:
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A special thank you to Crown Publishing and NetGalley for an ARC in exchange for an honest review.BEFORE I FORGET a courageous, rare, and bold memoir—the painful truth, a personal journey and fight of early- onset Alzheimer’s; a supermodel, restaurateur, publisher, and celebrity chef, B. Smith.With incredible insights, education, and impeccable research from husband Dan Gasby, and beautifully written by Vanity Fair contributing editor and master storyteller, Michael Shanayerson —keeping you glued to the pages, as if a work of fiction versus non-fiction, with wit, honesty, and sensitivity. A beautiful love story, which will melt your heart. Top Non-Fiction Books of 2016—A Must Read!America’s super couple steps out boldly to use their status and connections as advocates to help fight this terrible disease, for more awareness, research, and education-- for a cure. Another critical reason for stepping out to take action, is finding and testing new drugs. They are expensive, like $1 billion for each new candidate. So it is important people take part in clinical trials.Alzheimer’s is the most under recognized threat to public health in the twenty-first century. The two most forward thinking states with driving forces are NC and Minnesota (education and activism on Alzheimer’s). There is much to learn and need for education and continued research in this fight. The easiest way is The Brain Registry —you do not to have Alzheimer’s to sign up or participate in a brain study trial.There have been many fiction books written today, tackling Alzheimer’s; however, this is the first book I have read which really hits home with a realistic everyday walk—from a caregiver’s point of view, a husband, a daughter and a patient, suffering from this frightening disease.Nine months before the book, Barbara was diagnosed with early-onset Alzheimer’s. As Dan reiterates in the memoir, they appreciate works of fiction, like Still Alice, and other books, which create social awareness—helping educate communities about Alzheimer’s and hopefully lessening the stigma of the disease.A disease that kills brain cells. The cells it kills first govern memory, (short-term), as the first indication. As it progresses, the long term memory diminishes, too. Eventually Alzheimer’s affect those parts of the brain that control actions and processes we take for granted from the five senses to physical coordination to swallowing to continence. It is unfortunately, both progressive, and so far, irreversible.Some 5.2 million Americans are living with this disease each year, with a new case every sixty-seven seconds. What was the sixth leading cause of death in the US has now moved up to third, just behind heart disease and cancer.One in nine Americans age sixty-five or older has it: 11% of the senior population; up to 33% for all Americans eighty-five and older. The scary number is 200,000 Americans under sixty-five have Alzheimer’s. Early-onset or familial Alzheimer’s, as opposed to late-onset, which is everyone sixty-five and older. When you think about 200,000 households where a family member under sixty-five wakes up in a fog every morning, and drifts through the day needing constant guidance from a loved one or hired caregiver.Plus, out of this number, two-thirds are women. A woman of sixty-five has a 1-in-6 chance of getting Alzheimer’s at some point in her remaining years—versus a man’s 1-11 chance. The difference is in part because women tend to live longer, and the aging process seems to exacerbate the genetic and lifestyle factors associated with the disease. Alzheimer’s changes everything around you.Where the book really delves into the statistics, is the alarming number of African Americans getting Alzheimer’s. They are twice as likely as Caucasians to get it. Ten percent over sixty-five have it. By the age of eight-five, half of all African Americans have it. Diabetes is also higher in the black community, and they tend to ignore the symptoms of Alzheimer’s longer than whites—as there is a stigma to Alzheimer’s greater than for most diseases.B. Smith is a perfect role model and spokesperson, to speak out for the African American community; to recognize symptoms, and take action sooner. From anger, forgetfulness, memory lapses, thoughtless, emotional ups and downs, preoccupied, unresponsive, wandering, mood swings, and the seven stages (or the three-main stages).Dan tells of his love story when the couple met, their twenty-one- year marriage, and how they have worked together to build their brand and their lives. Their restaurants, their business, their dreams, and their lives. Now struggling between proper care, fearful to allow her to be out of his sight, some scary hours when B goes missing, and her need for independence--fighting against an in home health caregiver. The patient is being robbed of their independence, making them feel even worse. (B walked the streets of Manhattan for seventeen hours in high heels, lost)—amazing.We also hear from B. Smith - her feelings, emotions, fears, confusion, routines, loss of human dignity, mobility, simple pleasures, and her need to be alone. Putting pride and privacy aside, Dan’s challenge as her husband and caregiver is to immerse himself in the present with her. Not to expect her to remember, just be there with her. Join the journey. They are on a journey you cannot prevent or block.The A’s of Alzheimer’s:• Agitation: nervousness, restless• Agnosia: Difficulty with processing sensory information; inability to recognize familiar objects, tastes, sounds, and other sensations• Amnesia: Loss of memory• Anomia: Inability to remember names• Anxiety: excessive worry or concerns• Apathy: Indifference; inability to feel optimistic and happy• Aphasia: inability to express oneself through speech• Apraxia: Loss of fine motor skillsBy stepping out to tell their story, B and Dan have joined a campaign of doctors, scientists, and policy makers, among other who see 2020 as the target date for managing Alzheimer’s and are doing all they can to hit that target. Not for curing it, not for preventing it—not yet for either of those. Just for catching it earlier, and maybe—keeping it in check so that patients live longer and keep some semblance of the lives they had before this awful disease afflicted them.We all know someone who suffers from Alzheimer’s. I have a favorite aunt; she cannot be away from her husband for a second. She does not recognize anyone else for him; not even her own children. Same as B. Smith in the story, she does not want an outside caregiver, thereby putting burdens upon the family. From driving, replaying questions, anger, guilt, resentment, self-pity, misplacing things, memory loss, late to appointments, horrors, sleepwalking, binge late night eating, denial, to hoarding.The aging of the baby boomers means the numbers are going up. A patient spends millions of dollars a year on care giving alone, in addition to the emotional cost. Sadly Medicare does not pay for a PET scan.“Time is elastic for B—that’s the word I use. A moment stretches to infinity; a day shrinks to no time at all. In public, she is as poised as ever. Alzheimer’s is perfect for celebrities. They greet people without being expected to know who those people are. The painful truth is that the woman who’s greeting them so warmly has no idea what day of the week it is, or year.â€To a patient with the long-term human tragedy of Alzheimer’s --five minutes can seem like an hour; an hour can seem like five minutes. One person has the disease, but everyone in the family is affected. No one’s life is ever the same. Not only thinking about managing them, but managing your own life in tandem with theirs; building in the time to be a daily caregiver, but also scheduling time off to replenish yourself and be able to help your loved on the next day.Inspiring and enlightening, a compelling and powerful read. I love how the book was broken out, easy to read from diet, health, insurance, tests, spirituality, research, Medicare, alternative therapies, yoga, exercise, patience, and unconditional love.Dan: “I’ve come to realize Alzheimer’s is like a tornado moving through a town. It destroys some buildings and leaves other untouched. You can thank God for the ones that were spared, or you can shake your fist at fate. As far as I’m concerned, it’s the luck of the neurological draw, brain cell by brain cell, plaque by plaque.â€With Alzheimer’s the past is the best place to dwell. You want to linger over everyone one of those sweet, long-ago scenes. They’re where happiness still resides. “There is still a living spirit inside the diminished person, the spirit of someone you love.â€You will laugh and cry!The number of Americans with Alzheimer’s will grow from more than five million today and to as many as sixteen million by mid-century. Caring or people with Alzheimer’s will cost our country twenty trillion in today’s dollars over this same period.Join their Journey for Hope, Help, and Acceptance in Our Fight Against Alzheimer's. They are thinking of all the others who come after B—the beautiful people with dwindling minds. Join to help push, pressure, and politicize until we get a breakthrough.Thank you, for this incredible story! Alarming. Eye-opening.
I am only halfway through the book, but it truly describes the journey that begins when someone you love dearly has Alzheimer's. It's heartbreaking, and difficult beyond what you can imagine. Still, my sister and I would not trade those years with our mom for anything. Not only are we grateful for the time with her, peaceful and honored to have given her the best possible care that she so very much deserved, but it also bonded my sister and me in a way that is stronger and more beautiful than anything. This book reflects the roller coaster emotions that caregivers feel, but also the love of the Alzheimer's victim that covers all the difficulties. A great read. Thanks to B. & Dan for writing this book.
WOW, thank you Dan Gasby and B. Smith. Your story brought the emotions so down to earth. Alzheimer knows no barriers, rich or poor, white or black, east or west it just doesn't matter with this disease. Your story showed the deep raw emotions of a man whose wife is so ace. The picture on the book caught my attention with the title. That alone I knew was something I had to read and I was not disappointed. Real life emotions and feelings expressed by Dan, B and daughter Dana. Mistakes made and lessons learned, anger, memories of a happy life until Alzheimer, now memories that carrying the family through those rough patches. Through your story, your mistakes become my lessons and hopefully I will not repeat them. The largest and most important part I received from the story is patience and compassion. A scripture comes to mind, Ephesians 4:2, be completely humble and gentle; be patient, bearing with one another in love. This is your complete story in Ephesians. THANK YOU AGAIN
I recently was diagnosed with Alzheimer's. I am 66. I was able to relate to the early symptoms B. was experiencing. This helped me feel like I'm not alone! Following B.s path down to Stage 5 has opened my eyes to what I need to be doing, for not only me but my family to prepare for this Journey! I have signed up for 3 trials.... I too want to help find a cure so my children and grandchildren will not have to go down this path! My own mother passed away in 2014 of Alzheimer's... I was her caregiver..... I tell everyone that Alzheimer's is like losing your loved one twice..Once at the last stages when she was no longer "my Mom" and once at the end of life! No matter how much I felt I was prepared for my own journey, reading this has added several things to my TO DO LIST! I would recommend to others who are or will be caregivers....Thanks!
Very well written and sensitive personal account of a husband's love for his ill wife. Having dined at B Smith's restaurant for years, I never was fortunate enough to meet her but I felt that I connected with this story. It has humor and will make you cry. It's raw in how frankly it is written, but this should be required reading for anyone dealing with a loved one with Alzheimers.
Beautifully and lovingly written, puts a human face on Alzheimer's. B. (who has the disease)starts each chapter about what she is going through, just a small bit, before her husband Dan takes over about what he is experiencing as a caregiver. His descriptions of the progress of the disease are chilling, and often terrifying. There are some valuable chapters on research, including the history of research as it concerns Black Americans. The one constant woven through this book like a golden thread is the love that Dan has for B., and that he would go to any and all lengths to help her fight the disease - or, at least enable her live with it as best she can. An important book for all generations, as most of us will be touched by Alzheimer's, in one way or another, in our lifetimes.
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